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European Porphyria Initiative (EPI)

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Informations pour les personnes atteintes de porphyrie aiguë intermittente, de porphyrie variegata ou de coproporphyrie héréditaire. [partiellement en français]

The mission of the European Porphyria Initiative EPI is to present an up to date approach to the understanding of porphyria focusing in particular on the prevention and treatment of acute attacks to provide information and support to families affected by porphyria and to support and encourage medical research


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Porphyria European Acute Epnet Porphyrias Erythropoietic Pain Information Protoporphyria Treatment Initiative Report Introduction Congresses Selecting Laboratory Diagnosis Support Groups Conditions And Diseases Genetic Disorders Porphyria Porphyrie Porphyrin Heme Hemin Hematin Normosang Pbg Ala Variegate Coproporphyria Protoporphyria Aip Acute Attack Red Urine Abdominal Pain Skin Lesions Epi Hepatic Porphyria

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Best entries for Porphyria and European

1 Who is EPI ? The mission
The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria.
Porphyria Acute European Erythropoietic Porphyrias Epnet Protoporphyria Treatment Information Initiative Pain Registry Summary Selecting Cutanea Red Common Research Cyim
2 Porphyria From Yahoo
From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome.
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3 European Porphyria Initiative (EPI) Informations pour
Informations pour les personnes atteintes de porphyrie aiguë intermittente, de porphyrie variegata ou de coproporphyrie héréditaire. [partiellement en français]
Porphyria European Acute Epnet Porphyrias Erythropoietic Pain Information Protoporphyria Treatment Initiative Report Introduction Congresses Selecting Laboratory Diagnosis
4 King George II and Porphyria Talks about
Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution.
5 Porphyria A look
A look at the different types of these disease and some of their characteristics.
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6 Suite 101 Offers links
Offers links and articles about Porphyria.
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7 Porphgroup An e-mail
An e-mail group at Yahoo dealing with the metabolic disease porphyria.
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8 Porphyria: The Unknown Disease Genetic metabolic
Genetic metabolic disorder. Overview of types, testing and diagnosis, and links.
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9 Acute Intermittent Porphyria Forum Information and
Information and links about Porph. Includes registration form for an email list.
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10 Me and AIP Acute Intermittent
Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment.
11 FinalWhistle News and
News and statistics from around the European Leagues. Plus European and International competitions.
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12 My European Adventure Pictures and
Pictures and details of the authors September-October 2003 European trip.
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13 German Shepherds with European Bloodlines Sites of
Sites of those who breed, show, work, or just own and love the GSD with 100% European lines.
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14 European Neurological Society Professional association
Professional association of European neurologists.
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15 European Car Magazine Features include
Features include technical information, how-to articles and event coverage as well as road tests of European cars.
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16 Go Barging Canal and
Canal and river cruise bookings by European Waterways, which owns, operates and manages ships in five European countries.
Cruises Cruise Holidays La Canal Scotland Italy England Gascony Clips Loire Midi Paris De Barging Holland Honeymoon Lorraine Faire
17 FM & TV DX Plaza Daily updates
Daily updates of FM & TV conditions in Finland, European FM & TV DX links, FMTVDX WEBList mailing list focused on European FM & TV DXing.
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18 European Motorcycle Universe Sheldons EMU
Sheldons EMU - Lists hundreds of European makes and models with historical articles, image galleries and forums.
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19 Kennys European Adventure Stories and
Stories and pictures from Ken Laskos 2002 European Tour. Includes Portugal, Spain, Morocco, Italy, Hungary and Austria.
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20 FISC European Spridget Racing An unofficial
An unofficial view of the European Race series for MG Midgets, Austin Healey Sprites or any derivative thereof. Contains pictures, dates, reports, profiles and other information.
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21 European Journal of Neurology Official journal
Official journal of the European Federation of Neurological Societies. Published monthly by Blackwell Publishing.
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22 Matts European Butterflies Features photos
Features photos of many rare and unusual European butterflies. Personal observations and comments on all species are included.
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23 A Brief History of Medieval European Joinery Illustrated article
Illustrated article includes resources on English and European furniture joinery.
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24 Guy Padfields European Butterflies Pictures of
Pictures of over 150 European species of butterfly, with butterfly diary, schools page, and links.
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25 European Coins Exhibit and
Exhibit and sale of European gold and silver coins of 19th and early 20th century.
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26 Euro Football League European league
European league table featuring over 200 clubs, using domestic and European results to show who are the best teams in Europe this season.
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27 European Golf Design Design Company
Design Company of IMG and the PGA European Tour. Gallery, profiles and press are listed.
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28 European & British Commonwealth Banknotes More than
More than 1000 high resolution scans of banknotes from all european countries, with thumbnails of each. Maps and country information included.
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29 Worldwide European Burmese Society A club
A club linking breeders of European Burmese from around the world.
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30 European Burmese Cat Ring A webring
A webring for lovers and breeders of the European-type Burmese cat.
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31 European Journal of Pediatric Neurology Publication of
Publication of the European Paediatric Neurology Society.
32 The Titles of the European Rulers The site
The site helps to decipher coin legends with titles of the European kings, princes, dukes, counts and other rulers.
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