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Thalassemia Experience

Thalassemia

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1 ThalForum - Thalassemia Community Forum An online
An online discussion board for thalassemia communities around the world
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2 Childrens Hospital Oakland Thalassemia Center A comprehensive
A comprehensive information center for patients and doctors about thalassemia.
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3 X-Linked Alpha Thalassemia M/R Syndrome Features a
Features a Yahoo! group for family support for individuals caring for others affected by 'Alpha Thalassemia Mental Retardation Syndrome (ATR-X).
4 The World of Thalassemics Information about
Information about the condition and the programs and activities of the Thalassemia Children Society in Jaipur, Rajasthan, India.
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5 Thalassemia in Malaysia Gives concise
Gives concise information about this genetic blood disorder disease in Malaysia and encourages affected parents to join the local support group.
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6 Ask About Iron: Transfusional Iron Overload Information A portal
A portal sponsored by Novartis, dedicated to patients who get regular blood transfusions for sickle cell disease, thalassemia, myelodysplastic syndrome and are at risk of iron overload.
7 Cooleys Anemia: Rochester Chapter The Rochester
The Rochester Chapter of the Cooleys Anemia Foundation with information about Thalassemia and a Yahoo Support Group.
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