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Muscular Dystrophy Campaign

Muscular Dystrophy Campaign Review Experience Muscular Dystrophy

Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.

Muscular Dystrophy Campaign for Government funding A simple less than a minute petition for someones life time


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Muscular Dystrophy Campaign Muscular Dystrophy Campaign Review see-search.com/musculardystrophy Statistic generated on 2024-04-19
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Best entries for Muscular and Dystrophy

1 About Muscular Dystrophy Personal page
Personal page with muscular dystrophy links and other personal content by individual with a type of muscular dystrophy called Friedreichs Ataxia.
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2 Muscular Dystrophy Campaign Muscular Dystrophy
Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
Muscular Dystrophy Duchenne Campaign Every Race Minute Senda Against Campaign_ Than Group Message See Support
3 FSH Friends Forum Mailing list
Mailing list for people affected by and having an interest in Facioscapulohumeral Muscular Dystrophy as well as other types of Muscular Dystrophy.
4 FSH Muscular Dystrophy Discussion group
Discussion group for people who have Facioscapulohumeral (FSH) Muscular Dystrophy, as well as family and friends.
5 Living with Duchenne Muscular Dystrophy Stacy Spence
Stacy Spence, a gentleman from New Zealand, describes his life with Duchenne Muscular Dystrophy.
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6 Limb Girdle Muscular Dystrophy Discussion group
Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy.
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7 Muscle Disease Discussion group
Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Associations 40 identifed neuromuscular diseases.
8 Hope for MD Hope for
Hope for Muscular Dystrophy Community is a support group that provides emotional and educational support to family members of those with Muscular Dystrophy.
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9 Duchenne Muscular Dystrophy Support eGroup International Rare
International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy.
10 Christians With Duchenne Muscular Dystrophy Mailing list
Mailing list for Christians who have Duchenne Muscular Dystrophy.
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11 Myotonic Dystrophy 2 Discussion group
Discussion group for those who have genetically confirmed cases of Myotonic Muscular Dystrophy type 2 or who have received a preliminary diagnosis for it.
12 Walk Of Life Biography of
Biography of Chris Barratt, a teenager with Duchenne Muscular Dystrophy
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13 DMD Information Duchenne muscular
Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
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14 Alaska To Argentina By Motorbike AMCHALLENGE is
AMCHALLENGE is a fundraising venture for Muscular Dystrophy. Photos and text.
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15 The Muscular Dystrophy Forum An online
An online support group for people affected by any neuromuscular condition.
16 JeffSpace: The Webpage About Jeff
About Jeff McAllister, who has Duchenne Muscular Dystrophy. All about his friends, family, interests, disability and life.
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17 Jeff Grey Jeffs experiences
Jeffs experiences with Duchenne Muscular Dystrophy, especially medical and equipment issues including non-invasive ventilators.
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18 Fight for a Future Group for
Group for friends and family of those with Duchenne and Becker Muscular Dystrophy, seeking a treatment for slowing down or stopping those diseases.
19 Living with Muscular Dystrophy. Information about
Information about MD, Thoms personal experience with Congenital Myopathy, chat room, message board and links.
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20 MD-List Mailing list
Mailing list to provide support for people affected by all different forms of Muscular Dystrophy.
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21 Suzannes DMD/Autism Page Coping with
Coping with Duchenne Muscular Dystrophy and Autism, from diagnosis at birth through third grade.
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22 Kellys Summer Camp Adventures Created by
Created by a former camper at a Muscular Dystrophy camp. Provides information and a pictorial look into the activities for children at these camps.
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23 Angels Among Us Inspirational and
Inspirational and informational site by a woman with FSH Muscular Dystrophy. Family page with pictures of her children, and MD page of what it was like to grow up different. Guestbook. Florida.
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24 Kevin M. Rudolphs Exciting Site Kevin, who
Kevin, who has Duchenne Muscular Dystrophy, attends the University of Louisville and has a web business as well. Interests, hobbies and accomplishments plus lots of MD links. Kentucky.
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25 Society for Muscular Dystrophy Information International Features organization
Features organization background, disease information, newsletters, membership information, resources, and contact details.
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26 Society for Muscular Dystrophy Information International Features organization
Features organization background, disease information, newsletter, membership information, and related resources. Contact details are also given.
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27 DMD Transitions Support and
Support and information helpful to the daily care of those with Duchenne Muscular Dystrophy, focusing on the transition from walking to adulthood (approx. ages 10-18) and adaptations parents find helpful. Those affected by DMD and BMD are welcome.
28 The Jones Family DMD Site Learn how
Learn how a family copes with Duchenne Muscular Dystrophy in son, Bradley. Bradley is about 7 years old.
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29 DMD Support List Mailing list
Mailing list to provide support for people affected by Duchenne Muscular Dystrophy.
30 Haynes Family DMD Info The Haynes
The Haynes family talks about their sons Duchenne Muscular Dystrophy and provides information and links on resources, current research and help. South Carolina.
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31 Dysferlin Discussion group
Discussion group intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice about Dysferlin deficiency, which causes Miyoshi Distal Myopathy and Limb-Girdle Muscular Dystrophy type 2B.
32 Cell Therapy Research Foundation Not-for-profit medical
Not-for-profit medical research foundation working to find a treatment for muscular dystrophy and other genetic diseases through cell/gene therapy. Site describes treatments and clinical trials.
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